Frequently Asked Questions

Q. I have recently heard that Aromatherapy may be good for treating epilepsy. Can you tell me which oils I should use?

A. First of all, it is important to remember that therapies such as Aromatherapy are probably best viewed as complementary therapies for epilepsy. In other words they are not an alternative to medications, but can be used to complement medical treatments such as anticonvulsants. Because many people with epilepsy find that stress, anxiety, anger or excitement triggers their seizures; aromatherapy is often used to produce a state of relaxation, which might help to ward off a seizure. Therefore calming oils such as Ylang Ylang, Camomile and Lavender have been found helpful by some people. But like anything with epilepsy, it is different for different people and some people have found they need a more arousing oil, such as lemon grass.

Some people use the oils to relax at the end of a hard day, by burning in an oil burner, while others have massages with particular oils. Often this is done to create a smell memory, in other words to associate a particular aroma with relaxation to create a calm state and therefore prevent seizures.

With any complementary or alternative therapies, it is important to consult your doctor as it is not always true that natural can do no harm. Aromatherapy oils are extremely powerful, and people with epilepsy should avoid certain oils as they may trigger more seizure activity. These include hyssop, rosemary, sweet fennel and sage, which are thought to stimulate the brain. Rosemary, for example, contains camphor, a known convulsant drug.

Reference:

Marshall, F. (1998). Epilepsy - The Natural Way Series. Dorset: Element Books Ltd.

 

Q. I have had epilepsy most of my life and am now in my early 30’s. I recently met someone who has just been diagnosed with epilepsy and their doctor is carrying out regular blood tests. My doctor does not do this. What are these tests and should I be having them?

 

A. Blood tests for people with epilepsy are done for a couple of reasons, usually to either monitor or test the blood itself or to monitor the level of antiepileptic medication in the blood.

Blood tests may be carried out when a person is first diagnosed to check for any underlying disease, chemical abnormality, vitamin deficiency or toxins in the blood, which might be causing the seizures. The tests may also be used to check the health and function of organs such as the liver and kidneys. Such tests, while not always relevant for diagnosis, may be useful to compare against later tests once someone has commenced medication to monitor any side effects. Once someone begins medication, the frequency of such tests depends on the medication/s being taken, the results of earlier tests and the general health of the person.

The other test from blood, which may be done for people with epilepsy, are blood levels ie measuring the levels of antiepileptic medications. However this test is not always useful on a routine basis. For example, consider a person who has not had a seizure in 12 months but the blood level test shows a low level of medication in the system. Should the medication be increased? Or alternatively a person has felt quite ill since beginning a particular medication. If the blood level test shows a low level of the medication, should the medication be increased? Generally, how a person is feeling, the side effects, and how well controlled their seizures are is a good indication if the level is appropriate for that person.

Phenytoin (Dilantin) is the one epilepsy medication which Doctors may routinely check via blood levels, especially when a person first begins treatment or at least until they are stabilized on medication. This is because the body breaks down Phenytoin in quite a different way to other epilepsy drugs. For most anticonvulsants, as the dose is increased the concentration in the blood increases proportionally. However, with Phenytoin as the dose in increased the blood level concentration may suddenly rise quite rapidly and the person may become toxic.

Reasons to do blood levels are poor seizure control, suspicion of non-compliance (ie not taking medication), pregnancy, growth spurts in children, or when a person may be unable to communicate to the doctor any side effects they are experiencing due to their age or a disability.

All tests, including blood tests should be done for a specific purpose, not just because you happen to be at the doctor’s surgery. As always each case is different and you need to ask your treating doctor why certain tests are or are not being carried out.

References:

Buchanan, N. (1990). Epilepsy Questions & Answers. Sydney: MacLennan & Petty

Marshall, F.(1998). Your Child: Epilepsy. Dorset: Element Books Ltd.


 

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